Glued to TV

21 May

I keep watching the news about the Moore tornado. I can’t believe how close some of those cell phone photos are. How did they not get blown away? I’m already thinking about doing a mission trip there in the fall. Years of work will need to be done there. Another plus of moving back to La Veta where we had several friends who did mission work with us. We drove through Greensburg a few weeks ago and was impresssed with the rebuilding. The damage of that tornado was still very evident because of the trees.That was our first mission trip that we put together. I so hope they find some more children alive in the rubble.
Struggling with both my feet. Actually the throbbing has kept me up most of the night. I may try to see doctor today instead of tomorrow. Really tried to stay off of them most of the day yesterday. It seems like they really flared up when I was in Topeka. Once again, I got hung up in a line at Office Max. A lady just kept yakking and asking dumb questions and then when it was time to pay she had to dig out her money and then dig out the exact change. Feet went downhill from there. Standing in one place is the worst.
Big trailer is getting delivered today. 28 feet. It will be parked in the driveway for a few weeks until Denny gets back to load it up. Volunteers will be welcome for that job. :)
Think I’ll shower, take a pain pill and wrap my feet in ice.

Day 35 Scary Storm

19 May

Interesting day. Was up until 3 am so slept in until 9 this morning. Went back to work on my micro pads and was able to get them all done. Then Billie’s famiky came out. Justin nd the boys went right to the dock and went fishing. Billie and Elliott stayed at the house with me to visit, meaning we try to talk over Eliottt who talks non stop. I finally said “Elliott, let Grandma Birdie talk!” That would last for about a minute. Shes so cute, you just let her have her way.unfortunately, some storms started happening so they thought they better get home. Good thing they did because a dooz came through. It blew so hard that I had to get in the closet with a pillow and blankee. Couldn’t see the lake because it was raining so hard. What was so scary was the roaring of the winds and it went on and on. No matter how scary, it was a much needed rain.
Reading the book “Banished, survivng my years with Westboro Baptist Church” Its really interesting to hear an insiders version of how one gets caught up in a cult like experience. Cant wait to see when she got a clue of when to leave that horrible church.
Going tomtry t8 go to sleep early. Need to get up I time to vacuum and pick up my messes befor I head to Topeka to get my tooth crowned.
Down to 6 days before I leave. Have lots to do before then.

Day 33-34, 7 days and counting

18 May

Lets hope as I am writing this that I don”t have to run to the tornado room. So far no sirens but definitely stormy weather.
Had a good day sewing. Finally figures out thepattern for my Ipad holder. Then I made 5 of the micro heating pads that I set on fire last week. I now have the Warm Tater so they are fire proof. Tomorrow I hope to try little coin purses that look like puppies and kitties. Speaking of puppies. There were to kids at the rv park today. They had soooo much fun playing with Jumper. Of course Meeko got all bent out of shape, so he had to chase his tail and the boys thought that was the funniest thing.
Denny is handling the group of ten campers that came in for weekend. Hes had some intersting conconversations. This group actually brought gifts and games for the patients at the Veteranshome. Dennys a little disappointed that he doesn’t get to make pancakes for them in the morning. They told him they had it covered.
Good news on the foot. I put one of my orthotic shoes on today for awhile and there was no pain in the arch. I’m thinking this is good news.
A shout out to my friend Mitzi. She was scheduled for a robotic surgery last Thursday. She got there at 5:30 am and was told the Robot was broken!! Luckily she is rescheduled for this Monday. Have never heard of that. Couldn’t the surgeon have done it using his own hands?
Going to stop now because my blinds are blowing like crazy and I think the storm has arrived.

Day 31 – 32, Frazzled and full of Guilt

16 May

It’s only 9:25 am and I’m totally frazzled out. Found out that campers have been sending emails that I wasn’t receiving, so figures all that out this morning. So thankful for the tech people I have helping me set up website, emails, etc. Feeling totally guilty for not being in Colorado all this time and so wish I was there helping Denny. Should I have had the foot surgery or not, etc………I will just try to stay calm until next Saturday, the 25th when I can be out there for good. Denny is handling everything so well and calmly. My stomach is swollen out to the max due to eating something yesterday that I shouldn’t have, whatever the hell that was. Had a busy day with Mom yesterday for doctor appts and errands. Also purchased some cute patterns for some more things to make for my little shop at rv park. Have to think of a name for the shop. Okay, I’m done whining. Posting a new story from niece Juli about her new treatment plan she is doing now in Sarasota, FL. She is so remarkable and continues to spread her faith to others by just being so positive about her cancer and the treatment.

The Goings-On
Written 14 hours ago by Juli Brown

This one may be a little long, but it’s to explain a few things that are going on here, so you don’t feel in the dark or that you’re not worrying that I’m under some occult practice. The treatments that I’m getting here are scientific and researched based (and didn’t originate in some tribal community). Some traditional MD’s and PT’s use them in their practice as well. They are used in the reputable alternative cancer treatment centers around the world and have shown positive results in overall health and well being to help my immune system fight off cancerous or other foreign cells. The chemo involves the less is more approach, and is implemented in a safer way. I have been reading the research of these treatments and learning as much as I can about all of this.

Because the ACS tends to discard research not funded by pharmaceutical companies, there is conflicting research out there about the affects of sugar and alkaline vs. acidic blood ph on cancer cells. Most of the documented research done in the medical field has surfaced in places like Germany, but it is scientific-based and conducted by MDs. Because my doctor here takes this approach, I’ve been cut off from sugar even fruit most days. Cancer cells have many more receptors than normal cells and feed off of sugar. I’ve also been put on an alkaline diet with juicing being the key, as cancer cells thrive in an acidic environment and cannot survive in an alkaline environment. The water I’m drinking is alkaline and my diet is raw, consisting of mostly dark green vegetables.

I’ve seen the holistic dentist here as well. There’s some research out there (even on the ACS website) showing that they’ve discovered specific bacteria as the cause of certain breast and prostate cancers. So patients in remission who have this type of bacteria can simply be treated with a specific antibiotic for 1-2 weeks and no longer worry about it coming back. Most of these bacteria originate in the mouth. The dentist here has sent DNA samples of the tissue in my mouth to a lab in Colorado Springs. This lab will compare my tissue samples to other patients who have my specific kind of cancer to determine similarities. The dentist said the lab has taken a particular interest in mine, because mine is so rare, and are doing some heavy research. They are partnering with labs in other countries as well, who are focused on finding the causes. I should get those results back next week. They are also discovering that metals, especially nickel and mercury, are also causing cancers. Because I had already known this, I had all my mercury fillings replaced with non-metal fillings a few years ago. And my dentist at home used a non-metal crown at my request when I needed one. The only metal I know of in my body is a staple in my right knee from an antiquated surgery I had 25 years ago.

The good news is my body is showing it’s in a healthier state according to my blood work. When I came in, the ph of my blood was acidic; last week it was alkaline. My blood cells are reproducing well and my bilirubin and liver counts are showing improvement. Plus, I just feel better. Unfortunately, this kind of cancer doesn’t have a “tumor marker” which is a way to show progress in blood tests for most cancers. That’s why MRI/CT scans have been the only way to determine if treatments are working. I’m over half-way through my chemo treatments now, just completed 6 of 10 today. I’m tolerating it better each time with this day being exceptionally great.

I’m also reading a book on healing throughout the scriptures, going from Genesis to Revelation. I’m in the Psalms now in the book and His promises are building up my spirit in a profound way. I’m so thankful for His healing!

I try to get out when I’m not hooked up to my buddy, Ivy (my I.V.), even if it’s just for an hour to go to the store. Otherwise, I’m walking around the parking lot with her to get my exercise, and looking like an escapee. One lady turned her car around to make sure I didn’t need help. I’m starting to get homesick and it’s harder to say good-bye to my family when they visit on Sundays. Only 9 more days though!

Thank you for the continued cards, letters, posts, and donations. My heart is so encouraged by you and I’m brought to tears on a daily basis by your love for me. I can’t imagine doing life without you all. God has greatly blessed me with you. Thank you for standing with me in belief and faith!

Love and hugs,

Juli

Day 31, Holiday Island, ARK

14 May

Another Whew! day. Got a later start for my trip than I wanted. First it took me forever to get the house neatened and the car packed. It’s a hassle with the boot and the sandle walking back and forth on gravel. First I headed to Topeka to return that piece of crap Samsung Tablet. Apparently the issue was the internet wouldn’t stay connected so they traded me for a new one. I don’t have wireless at my Mom’s so I won’t know if it works better for a few days. Then off to Kevin’s Shell service station to fill up with gas and get a tail light. Of course one thing lead to another, they double checked to see if mu spare was full and it wasn’t so they took it out to fill it. When they did that, they discovered that there was a BIG mouse nest in the trunk. I could have felted a purse with all the nesting material. Kevin vacuumed it all out and I was finally on my way. Of course thinking that anytime a mouse would be crawling on my head. Uneveventful trip until I was passing a semi and there in the middle of my lane was a huge rubber pot, like as big as my car. Do I go in the ditch, go toward the semi, let the pick up behind me ram me from behind??? I maneuvereed and missed it with no incident, but it could have caused problems for others behind me.
I was planning on seeing my brother in Cassville on the way down. I got a little lost trying to get there and once there, I couldn’t find his street. You know why???? Because he doesn’t live in fricking Cassville, he lives in Monet. I had to call Denny to find that out. My brains were working pretty well for the past few days, but they made a detour today. I did finally make it to my Mom’s and I hope after a good night’s sleep I will be unscrambled once again.
Denny called this morning with an exciting campground story. We had a tent camper there last night. He said he couldn’t sleep so he got up and sat in his car for awhile to read. Next thing he knew, there was about a 300 bear crawling all over his car. He had cooked bacon for dinner and had put the pan outside and he also had food in his car. 2 BIG nos nos in Colorado camping. Nothing was damaged but the bacon pan did get licked clean. It’s a little early to have that hungry of a bear roaming around so we may have to call forest ranger on it.
That’s it for now.

Day 28_30 I think

13 May

Whew.  What a crazy few days.  Had a good trip to La Veta.  Judy and I arrived in Trinidad Saturday morning around 9:50 am. Denny and Meeko and Jumper were there to greet us. Didn’t get a lot of sleep but we were able to do quite a bit before a little nap that afternoon.  The RV park looked wonderful.  It was unbelievable how much work had been done.  Denny is still very focused on projects that need to be done. Main focus is making some new fencing to hide all the debris they have cleaned up. We thought we would be able to burn it up but now will have to haul it to the dump which will take several trips. Judy and I were able to set up quite a bit ofthe Quickbooks. I update our reservations for the season.  Judy was able to enter our receipts from the week and today Denny made our first deposit! Sunday we had a couple come in who said they stop there every year on their way home from winter traveling. Another couple came in from Denver scouting around where they want to camp for summer. Hopefully they will pick us. We are going to meet so many people this year from all over.
It wasnt all work and no play. Judy rode Dennys bicycle up to Cuchara and back Sunday with, Sandy, Diane, Vince, and Ann. She rode 25 miles which was cool. Denny and I went to church and I got caught up with several friends.
We left Trinidad about 7 pm which was over an hour late. We arrived in Topeka about 6 am.  After doing some shopping I headed home.I was so sleepy coming I ate 2 tootsie pops. Yech.  I think I was asleep within 10 minutes after getting home. After waking up after about 3 hours, I got going on some projects. Changed the date for the moving trailer to be moved to next Tuesday. Designed and ordered rv park business cards. Booked
a flight to Paris with my friend Margie for October. And tried to stay off my feet as much as possible.. I was so surprised how much I was standing in one place visiting with people who came into the office. Denny is going to purchase me a stool to use behind the counter. I felt bad that I couldnt do more pysical work, but just not yet.
Heading to Arkansas for rest of the week to see my Mom.  Talked to my sister Judy and if everything works out right, she and Marvin will bring Mom out to LaVeta in June. that would be so cool. It will be fun to show it to the family.
I’m going to Topeka on my way out of town to take this piece of crap Samsung tablet back . I am so frustrated with the touch screen, I could go tbrow it into the lake. 
Thats it for now.  Beautiful weather today.

Day 26 and 27

10 May

Actually having a quieter day. I was up really late last night making little quilted projects. Even though I potentially could have burnt the house down, it was a good art day. I was making a microwavable bowl warmer. Apparently the microwave didn’t like my batting. I put it in the micro with a bowl in it and after about a minute I smelled something burning. Luckily it wasn’t in flames. I immediately got online and ordered some Warm Tater batting which should take care of that issue. My other project was making some of my cheery hot pads.
I’m trying to post some photos but I cant get anything to open. I’m struggling with this little Samsung today. I thought maybe it was getting low on battery so when I went to plug it in, the plug tongs were missing! The tongs are actually still in the outlet and all the way in. #$/&*(@#×% £€¥₩*&^$ Now I have to allow time to go into Best Buy and geg a new plug. Now if it is like the Nook Charger and you have to order online, I will have a @#$×/^&*(¥€£% cow. I hate the need to have different plugs for Iphones, Ipads! Nooks, Sky Caddies, Cameras, etc.
Was up early to neaten house for 10 am showing. Went to Eskridge and yakked with Erin and had breakfast at the cafe. I was going to get a couple of tootsie pops and all Erin had were chocolate and pomegranate. Yech. So when I kindly complained, she gave me a whole unopened box of tootsie pops for free!!
Denny is on his own since Dave and Sherry left today. He couldn’ t believe how much work they accomplished. Looking forward to seeing him and puppies in the morning. He’ll pick us up from train.
Thats it for now.

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