You can hum the “12 days of Christmas” while you read this.
This is what has caused all the trouble. Judy lives on a hill and a curve and we are on a side road so we have been stuck. We’ve heard horror stories of people attempting to get out and sliding back down some of the steep hills. That sounds terrifying to me. Also, the workers at the assisted living have been unable to go home all this time and last night someone broke into their unlocked cars and stole Ipods and money. Who would do that!!!! Before you say “why did they leave their car unlocked”, the locks are freezing up.
I sewed 10 microwaveable bowls for an order of 13 of which I already had 2 done but I still miscounted and I was still 1 bowl short which I still have to make.
I came down with a case of hives from who knows what. Maybe using soybean oil in a cake mix??? Who knew that Crisco vegetable oil was pure soybean oil?? They are all over my body. I’ve been living on benedryl for 3 days now and I hate how it makes me feel but I hate itching more.
I’ve started painting Christmas ornaments with pets on them using minimal amount of paints.
Jolene, Marvin and I take breaks and play Spite and Malice. We get in about 3 rounds a day. Marvin is busy puttering around, feeding the birds, trying to get a car to start, cooking and dealing with having 2 sister-in-laws in the house with him. Jolene has been puttering around cleaning cabinets, hemming a bed skirt, doing dishes, etc. Everything stops in this part of the country, no mail and no newspapapers. We are expecting 2 more inches of snow this afternoon. We just heard from sister Judy and she is getting a ride from the assisted living after being there since Wednesday night. We made need to deprogram her. Mom is doing okay I guess. She won’t leave her room which I wish she would but she seems comfy in her new surroundings.
I’ve also handled all this situation without anti-depressants which I have not been off of since 1995. I am still going to try Cymbalta for my feet but if it doesn’t work I think I’ll try to be off of the anti-depressants for awhile. Maybe I’ll drop the 25 pounds I put on when I started them. That would make me happy.
Denny has been very cold in Texas and we are missing each other bunches. May see him sometime next week.
Jolene has changed her plane ticket 3 times since last Tuesday and changed it again today to try and leave Thursday. Southwest is so good about not charging for changing flights.
Love this photo of Elliott. We think she looks happier being a hockey player than a ballerina. She is no longer taking ballet and is getting a pair of ice skates for Christmas.
That’s it for now.
October 27-Mom was found in her apartment laying on the floor after an apparent heart attack. She had been there for at least 18 hours.
After going by ambulance to the hospital it was determined she had a major heart attack.
November 15-It was determined that she would go to a nursing home for further rehab even though I wasn’t to pleased with the nursing home..
November 22-After a visit to her doctor to get her released to go to assisted living it was discovered that she was extremely anemic and was taken to the hospital by ambulance. She was given 4 pints of blood and she was out of her head for a few days. We actually thought she wouldn’t survive the day.
November 23-She was complaining about pain around her hips and was unable to use the walker. They took to Xray and discovered broken pelvis. (We have confronted the nursing home with records but as of now no one knows what happened and the case is closed because Mom doesn’t remember falling.)
November 28-She begins bleeding internally and has a UTI and is out of her head again.
December 3-afternoon-I went to visit her and her blood pressure was 88-52. They were about to hook her up to IV’s. They have been taking blood from her 4 times a day. Her little arms are covered with cotton balls and bruises. I ask her if she wants to be put back on IV’s. She says no, she is ready to go. It has seemed that every time that they have treated her for something, another situation arises. We call the sisters to the hospital and meet with the doctor and make the decision for Mom to go to Green Acres the next day. (Regarding the doctor, he was SOOOOOO HANDSOME AND SWEET. IT BROUGHT BACK MEMORIES OF WHEN I USED TO KISS THE TV WHEN DR. KILDARE WAS ON!!!)
December 4-What I thought was going to be a productive day for me since it wasn’t necessary for all of us to be at the hospital for the move, became very hectic. My sister Jolene wasn’t feeling well and her blood pressure was high. I had also spent the morning trying to get the Cymbalta refilled which kept being denied by insurance. Off we went to the hospital where I dropped Jolene off at Emergency, went down the other hall to see Mom, back to Jolene, back to Mom and then in the car to drive another 30 miles to Harrison to go to Walgreens where I paid $44 for 5 Cynmbalta to tide me over until the insurance approves the scrip. What a f@#$%^ rip off. Drug companies suck!!! Back in the car to pick up Jolene from the ER and then over to Green Acres to see Mom. She loves the new place and is happy to have her things all around her.
December 5-We are iced in at Judy’s house. Judy is staying with Mom until storm passes. If you saw the hills around here you would understand why we are iced in. You couldn’t pay me to drive today.
Soooooooo…not quite sure what the next step is. Jolene is leaving Tuesday, maybe. Luckily Southwest doesn’t charge you for changing flights. We’ll see how Mom does the next week or so. She does not want to go back to the hospital and will eventually go into in Hospice if needed.
Today and tomorrow I will be sewing like a maniac. Many orders to fill.
Denny is cold in Texas for a few days.
Stay warm everyone.
Is it really December 3 and Christmas is barely in my thoughts. I do love how Eureka Springs area decorates and I always feel happy when I see colored lights. My favorite thing to do with a Christmas tree is to sit in the dark and just stare at the lights.
Mom survived her latest scare of internal bleeding that began on Thanksgiving. It has apparently stopped and now she is having low blood pressure and much more pain in her chest. She is doing some rehab while in hospital. Regarding the pain in her chest, we don’t know what that is. One doctor says it’s arthritis in the chest and the other says there is no such thing. We think she pulled some muscles doing some rehab but we’ll never know. When you are DNR, they don’t do any testing or xrays other than what you were admitted for. She is still low on blood and does not want any transfusions. Once again she is ready to go on and be done with it all. We do have the new place at assisted living ready for her when she gets to move. Will she actually make it there, I don’t know. I do know that I am done writing her off. I have had her passing away 3 times since I’ve been here. Her little body is quite bionic and seems to repair whatever goes wrong.
Denny just left this morning to head back to Texas. He had a busy week helping with packing and moving and running errands. He can’t believe how many miles he drove just around here. It’s nothing to put 100 miles on the car in a day with visits to the hospital.
I did finish what I could do regarding the nursing home. Talked with the director yesterday and she had interviewed everyone. Some comments that my Mom heard were revealed but no one recorded a fall. My mom doesn’t recall, so basically the case is over. We did talk about even though someone doesn’t have their hearing aids in doesn’t mean that can’t hear and that daily bruise checks would be a good idea.
Denny and I had a really good weekend in Springfield. Movie reviews: Gravity: Really good as far as really feeling what it must be to be floating in space but it got a little hokey toward the end. Good movie despite that. Dallas Buyers Club: Excellent movie. Matthew should win Oscar. I liked that the gay community was not stereotypical in the movie and the pain and anguish over AIDS was portrayed. You get a good vision of what it is like to deal with the FDA. Everyone should see it to be reminded that AIDS is still around. It still kills and there is a new strain of it coming about.
Today I’m trying to get some projects done. I have one ornament to paint and many bowl holders to sew. Will go see Mom this afternoon. Sister Jolene will leave tomorrow.
Have been on Cymbalta for 2 weeks now with no luck regarding feet. I can also use it as my anti depressant and it seems to be doing okay regarding that. We are going to increase dosage for 1 month and if no relief, I’ll just use it as anti-depressant. I wish one could take prednisone forever since that really took the pain away. Oh well.
Expecting some of the cold front later this week and we will seriously have to be ready for it. We are surrounded by hills and when there is ice you are stranded at home. I think Judy is going to just stay at hospital if it hits.
That’s it for now.
Last night when Denny was bringing me over to the hospital he was talking to me and I wasn’t listening. He said “what are you thinking about?” I said “my blog and how it was going to be titled I’m not happy and I’m not thankful”. He didn’t think that sounded very nice and I said “that’s just how I feel at this moment”. We stopped at this little Mexican café in Berryville for dinner. It’s a little family owned place that has been in the area about 20 years. Our waitress was an older lady who had that “lifetime being a waitress” aura about her. So..I started talking to her and turns out she’s been a waitress for like 20 years. She said she’s been with this restaurant since the early 90′s. Then she told us about a teenage boy who was dating the owners daughter back then and he took the dishwashing job. He is still there washing dishes and she said that he is the highest paid dishwasher around. We met the son and the owner. The son graduated from CU in Boulder. He was so polite. So after this little encounter, I couldn’t believe how much better I felt mentally. It’s so easy during this difficult time to just stay in my head and not feel very well.
Had a good night with Mom. She was once again disoriented when I got here but the nurse said “it’s nighttime and that is when Sundowners kicks in”. She woke about 5:30 am after a good night’s sleep. We are so grateful for her being able to finally sleep. When the nurse came in to check vitals, Mom gave her the sweetest smile and she said that she was the first patient to smile at her. Mom and I had a fun little chat and she gave me one of these sweet smiles that just makes me want to gather her up in my arms and just hold her.
I am thankful for the kind little hospital that Mom is in. I am still so impressed with the entire staff and feel Mom is safe here. We may be dealing with a new issue today, but I’m confident that right decisions will be made.
The sisters and I did go to the nursing home with records on Tuesday afternoon to talk to them about Mom. We all felt good about how it went and how the director was going to get right on it. About an hour later the director calls me to say they did a full body check on Mom on admission and that there was a bruise on her hip. (We have a photo which shows she has a bruises from her hip and all over her pelvic area in the front) Then she proceeds to say “This happens all the time. The patient goes to the hospital and there may be a hairline fracture that is missed in an Xray. They do a little rehab while there and then they come here and begin more vigorous rehab and the next thing you know they have a fractured pelvis” So they are already back pedaling. My next conversation with her will begin with “well if this happens all the time, why they hell didn’t you take her to the hospital and see why she was in so much pain!!!!”. Emotionally, I can’t deal with it right now but I will go back next week and talk again. Just can’t believe she gave me a call like that. I would think that the nursing home would not want to piss off the sisters with that type of attitude.
I am very thankful for many things around me: Mom, sisters, Denny, a patient brother in law who has let us invade his home, my kids, my puppies, my friends, my life.. I may not feel very happy at the moment, but I am trying to deal with all the issues a day or an hour at a time. Again, thanks for listening and I hope you all have a good day.
My blog has been fairly gloomy, doomy that last few posts so I thought I’d share some cheerier moments.
Mom is finally getting some sleep with some help of some meds. Thank goodness, she hasn’t slept for weeks. Tonight is my night to be with her. She is glad someone is with her at night because she has some scary dreams and when she wakes up she likes to feel someone holding her hand.
On Saturday, I really thought it was Mom’s last day. Her eyes were glazed, she was confused but she did know who I was. I leaned in to ask her if she knew who I was and she looked at me and said “You’re my little Jbird”.. tears, tears. She had to receive 4 pints of blood and they said it could make her a little loopy. Once conversation really made me think she was fading away. She was telling me she was going around a corner. I was doing the hospice thing and soothingly said “Go around the corner Mom, it’s okay.” Then she said “I don’t know anyone there!” and she was scared. So I said “come back around the corner, I’m here”. Later that night Billie was staying with her. Mom was restless and talking out of her head. She asked Billie to hold her hand and go up the stairs with her. Billie thought it was a hospice moment and said “let’s go up the stairs Grandma, it’s okay.” Well turns out once they got up the stairs there was a big black hole and that scared Mom. Eventually Billie had to physically move her bed so Mom would think that the black hole was covered. The photo is of Billie letting Mom know she was right there. As the night went on, Billie ended up calling me about 2 and Denny brought me to the hospital. We moved the extra bed next to Mom. Soon Billie and I were spooning in the same bed and dozed off. All of a sudden I heard something and I looked up and it was Mom trying to get out of bed. I jumped over the bed rails and Billie to stop her. Whew! That was scary. She has also had many dreams about being in the woods with Greg, (we’re not sure who he is), she has had a marijuana party at Peachtree Assisted living, she has been on picnics and she has seen many relatives who have passed on. Sometimes it’s hysterical when she is relaying her dreams. Many of our conversations are a little crazy and we just go along with what she is talking about.
We are still very upset about what may have happened at the nursing home but can’t go over there until they let us have her xrays from here at the hospital and right now they say we have to wait until she is released. I’m trying to reign in my anger.
We are now seriously in the moving mode and still plan that Mom is going to Green Acres Assisted Living. Denny will be busy tomorrow moving boxes and small pieces of furniture. I hope to have a day off. My mind is very befuddled and I keep saying weird things and actually sounding like Mom, sooooooo, I think I should spend a few hours sewing or something.
Meeko and Jumper are enjoying Judy’s house. They are getting groomed and bathed tomorrow which will be nice. Jumper is sooooo furry.
That’s it for now. Battery about dead and I am drowsy. Mom is snoring so I may be able to get some sleep.
Today was a full day. We had a doctor’s appointment this morning to have Mom checked out before we move her to Green Acres. It was rather traumatic.
Yesterday the nursing home set my Mom out in the hallway thinking I was going to be picking her up to go to the doctor. I don’t know how long they made her sit there, but finally they figured it out. My Mom knew that the appointment wasn’t until today. Soooo……last night I double checked that they would be bringing her to the doctor. 8:15 came and went and we called the nursing to once again find out that they thought I was picking her up, yada yada,. She finally got her to the doctor’s about 9. She was in so much pain, (sciatica in the hip maybe), exhausted, confused. The doctor thought she looked pale and a little yellow. Did blood work and gave her a cortisone shot in her back. Let’s hope she feels a little better tomorrow. She has gone so backwards the last few days that I’m not sure she will go forward again. After all of that I got to work on getting hospital beds and a wheel chair delivered to the new place. I bought special sheets, a lambs wool pad for under the sheets. I hope this helps the bed feel more comfortable. Went to the Home Health place to get her set up for in home rehab. Washed the new sheets and made her bed up and moved a few things from her apartment. What made me feel sad is that with the snafus that have happened with Mom at the nursing home, again I begin thinking about those poor souls who have no one. How long would someone else waited for someone to take them to the doctor. How long do patients wait for help when they push their buzzer. Just how impatient is the help with the patients at night like my Mom says they are. This particular nursing home has some employees working 16 hour shifts. How tired are they during the middle of the night when my Mom needs to go the bathroom. I did talk to the director at Peach Tree and was able to voice some concerns regarding checking on their people even if they are independent. Hopefully no one will ever lay on the floor for 18 hours again there. It’s chilly, rainy, foggy, dreary so I’m sure that plays into the sadness. I hate to have to move Mom again but we truly feel she will feel much more comfortable and should get the needed attention that will be required. Move should happen around 10 am. Judy and Marvin should be home around 3 and Denny should be here around 6.
Making another pumpkin cake for some comfort food.
Home for the evening. Actually a quiet day. Had some errands this morning and was feeling achy so I took some Tylenol and took a nap all afternoon.
Just back from seeing Mom. I asked the employees to please not keep Mom in the recliner so much, so.. when I go visit Mom tonight she tells me how they are keeping her busier and they make her do an “Ac-tiv-iteee” in the afternoon. When I walked in tonight, one of the aids said “I just put her in the recliner.” When I walked into Mom’s room she said “I just got into the recliner!!!!” Kudos for the nursing home listening to me.
Tomorrow is doctor appointment and determinations if Mom can move this weekend.
Started taking new anti depressant called Cymballta today. Thought I would read side effects. The one that caught my eye was “Abnormal Orgasm”… I’ll keep you posted if it happens. I do hope that this med helps with the feet issues which is why I am doing it. Yesterday I made many trips to my Mom’s apartment taking boxes to her room and by the time I had packed up some boxes the icky pain was all back. I felt defeeted but Denny says we are going to win the feet battle. Got a tip today from Gayle’s sister to try Strutz. We’ll see.
I drink Throw Back Pepsi. I keep finding the shelves empty when I go to the little store here to purchase some. I was in the little quilt store the other day and found out that the lady that works there buys all the Throwback when it comes in!!! Told her to leave me 1 12 pack. Love the quilt shop here.
So happy that Denny is coming Friday and will be here Friday night. Can’t wait to see him and puppies.
Have purchased a draft table, a sewing table and art display racks from an artist who is a friend of my sister. She has had to move to an assisted living place so is unable to use them anymore. She also let me have art books, quilt books, brushes and paints. She is 85 now and was a very good interior designer for her career. She took her first art lesson at 65 when she moved to Holiday Island. I love it when people aren’t afraid to try new things late in life. Anyway she is a fabulous artist and we’ve had some good conversations about some of the different techniques she has used.
Anxious to see the movie “Dallas Buyers Club”. ‘
Got lost driving somewhere today and ended up way on the hills around Eureka Springs. This is really quite the area. Little, quaint homes scattered all over. Eureka Springs only has 1500 people. It still seems very busy in town even during this time of the year. They have the horse drawn wagons all lit up with Christmas colors and they look so pretty going down the street at night. I think Denny and I need to do that while he is here.
Some excellent restaurants.
Love packing my mom’s curio cabinet. She has some of the most beautiful little items.
Have talked to many friends this weeks and I am so lucky to have such wonderful and caring people in my life.